Monday update

Brody is still doing very well. He is still off the vent for a week now, whohoo! He is on c-pap and doing very well. His feeds are up to 20 ml every three hours and he is doing great with that. He weighs 2 lbs, 3 oz and is growing and growing. He has started to wear clothing which we think is so cute! He is pretty much holding his own. We are very happy with his progress.

Drew is doing okay. His surgeons put in a reservoir in order to better access his brain to tap his fluid. They gave thought to putting in a shunt but changed their minds as he is still too small at this time. He did okay with the reservoir placement, but they have not fed him since Thursday. He has been having problems with his oxygen and Co2 so they have raised his vent settings. He has pneumonia and is being treated for that. The poor little guy has had so many things wrong with him we feel so bad. They used his new reservoir to tap him and removed 15 ml of fluid. He seemed more comfortable after that. He weighs 2 lbs, 5 oz. We have noticed that he does not really sleep he just cat naps that should make things interesting when he comes home ;)

Amber held both boys today. It has been about 2.5 weeks since the first time we held Drew. Drew did well and he hung in there for about an hour and a half. Ever since he has been at UCD he doesn't really sleep. It is really loud there and they just have him in a bed where all the noise can be heard. We can't wait until he goes back to Mercy. At Mercy the swaddle them and allow them to rest. Mercy is also much better with parents and giving updates daily.

Brody loves to be held and talked to. They are even talking about taking him off the C-pap and moving him to a nasal cannula. Big step!