Friday, February 26, 2010
There is was many times that we never thought that we would see the day.
Drew is home!!!! He is amazing! He came home on November 4th 2009. He came home with no medical assistance. No oxygen. No medications. No feeding tubes. I think we have a little over achiever on our hands. He will be missed at UCD. Drew Lane gave a lot of families hope and doctors and nurses as well. He beat all odds for sure.
When Amber was on hospitalized bed rest the NICU doctors came and saw us and handed us a sheet of odds. Along with that sheet they gave us a list of things that micropreemies may be facing. Honestly I think that Drew had the majority of the medical problem that were on that list. It was so bad at one point that Doctors and nurses discussed having us make a choice to discontinuing care. For those of you that can't fathom what that means it means stop all cares and let him pass. In the moment it felt like they were pushing us in a certain direction. Overall we felt that decision wasn't up to us. If he couldn't fight anymore he could leave on his own. Drew fought so hard to be here and we fought with him all the way. We discussed this with each other and we always knew that we wanted him we just didn't know how much he wanted us. After 138 days of fighting he was able to come home and be a baby and not a patient.
When Drew came home he had a very hard time adjusting. He may have been on full feed (with a bottle) for a little over a week and wasn't very good at eating. Honestly he still isn't very good. He only gained 4 ounces in the first month. Drew also had a hard time being unswaddled. We think that is because of his low weight and body temperature. Open spaces were difficult for Drew. He was in a isolette for a long time because he had the stoma and didn't wear clothes. Having all three under one roof was what we had been asking for and wishing for months. Finally!
Drew has had this little smile with of coures his little dimple through out the whole time. He is a surviver. Drew has made it through pre-term labor, emergency c-section, being intibated, out of the delivery room, PICC lines, spontaneous perforation in his intestines, heart surgery (PDA), stoma, infections, blockages, chest tube,fluid on the lung,head being tapped over 30 times, countless Brady's, Shunt, many breathing systems and so much more. Watch out world!
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